Basic Info about Kawasaki Disease
Kawasaki disease is a rare syndrome of unknown origin that causes high fever, reddening of the eyes (conjunctivitis), lips and mucous membrane of the mouth, gingivitis (ulcerative gum disease), swollen [...]
Common Molecular Mechanism Linked to 3 Seperate CHD’s
Three separate heart defects share a common defect at the molecular level, according to a study by members of the Center for Molecular and Human Genetics. Aortic Valve Stenosis (AVS), [...]
New Fetal Health Center at Children’s Mercy Hospital
Children’s Mercy Hospitals and Clinics is establishing a new Fetal Health Center, designed to provide an integrated, multidisciplinary approach to caring for infants with serious congenital birth defects before, during [...]
CHD Medications
Medicines are often needed to treat congenital heart defects until the defect can be repaired or corrected. Some complex acyanotic heart defects and most cyanotic heart defects require ongoing treatment [...]
Heart for a Heart! Chloe-Cakes Greeting Cards
Many of you know that my daughter Chloe was born with a CHD - Congenital Heart Defect (see the ABOUT page for Chloe's story). We spent the first month of [...]
Infants Needing Heart Transplant May Be Able to Accept Heart from Different Blood Type
New findings give infants a greater window of opportunity, better survival odds. A study showing that infants under one year of age can accept heart transplants from donors of different [...]
Organ Donation Policies Vary Amoung Children’s Hospitals
Children's Hospitals have widely varying policies on organ donation after cardiac death (DCD), according to researchers, who asked 124 hospitals in the United States, Puerto Rico and Canada about their [...]
Welcome To Holland (my thoughts exactly…)
I originally put this piece of inspiration at the bottom of my ABOUT page, but it's too perfect to be hidden from my fellow heart families. Welcome to Holland by [...]
What is Mycocarditis?
Myocarditis is a condition where the muscular walls of the heart become inflamed. Myocarditis typically results in poor heart function.There are many causes of myocarditis including infections, medications, chemicals, radiation, [...]
Some Fertility Treatments Linked to Birth Defects
A new study from the Centers for Disease Control and Prevention has found that infants born as a result of assisted reproductive technology, or ART -- such as in vitro [...]