Adult CHD Survivor & World Cup Soccer Champion Lauren Holiday!
August 27, 2015 was nothing short of an AMZAZING night! I am beyond honored to have been invited to the final home game and retirement ceremony for CHD Survivor and [...]
Run for LITTLE Hearts
2014 was the Inaugural Run for LITTLE Hearts!!! Over 600 people came to support the cause. In 2015, close to 800 people were there! I also love having the hundreds of virtual [...]
Run for CHD with my Training Programs!
Never had a reason to run....until now? Well I am here to help you raise CHD awareness all the way to the finish line! I am SO excited for the [...]
run for LITTLE hearts
I did it! I still can't believe it. I FINALLY pulled the trigger on my CHD Awareness Run! run for LITTLE hearts 10K/5K/Kids Dash on May 4, 2014 (Kansas City, [...]
Heart Defects possible in Simpson-Golabi-Behmel Syndrome
What is Simpson-Golabi-Behmel syndrome? Simpson-Golabi-Behmel syndrome is a condition that affects many parts of the body and occurs primarily in males. This condition is classified as an overgrowth syndrome, which [...]
Heart Defects Present in Ellis-van Crevald Syndrome
What is Ellis-van Creveld syndrome? Ellis-van Creveld syndrome is an inherited disorder of bone growth that results in very short stature (dwarfism). People with this condition have particularly short forearms [...]
Atrial Septal Defect Present in TARP Syndrome
TARP syndrome is a rare condition affecting males that causes several birth defects. TARP stands for Talipes equinovarus, Atrial septal defect, Robin sequence, and Persistent left superior vena cava. Those [...]
Heart Defects possible with Peter Plus Syndrome
What is Peters plus syndrome? Peters plus syndrome is an inherited condition that is characterized by eye abnormalities, short stature, developmental delay, an opening in the lip (cleft lip) with [...]
Heart Defects Present in Kleefstra Syndrome (9q34 deletion)
9q34 deletion syndrome, also known as Kleefstra syndrome, is a rare genetic disorder. Terminal deletions of chromosome 9q34 have been associated with childhood hypotonia, a distinctive facial appearance and developmental [...]
Chloe’s Law will FINALLY pass in 2013!
Having Chloe’s Law finally reach the Governor’s desk is the ultimate Mother’s Day gift! When I began this journey in 2009, I had no idea what I was getting myself [...]